An independent, pan-Canadian space for the aHUS clinical community
The Network aims to complement the work of existing patient groups, advocacy organizations, and other partners with a shared goal of enhancing Canadian aHUS care.
Our aim is to support the complete aHUS clinical care team
Community support
We welcome members of the broader Canadian aHUS community to join us in building a collaborative, informed, and empowered network.
Our Vision
To be recognized as the leading nationwide network group that brings HCPs, patients and aHUS experts together towards a shared management approach to advocate, raise awareness and advance the care and quality of life of patients and families living with aHUS.
Our Mission
To provide an aHUS network that advocates to raise awareness of the disease and identifies referral pathways in all provinces and territories to bring a high standard of clinical practice management, diagnosis and treatment of the disease through expert connections, continuing education and ongoing research.
Governance structure
The Canadian aHUS Network operates with a collaborative governance model that ensures independent development while maintaining appropriate oversight of resources.
CPD Network
(physician organization)
Grant administration and collaboration with the Steering Committee and Agency
Agency support
Logistic and implementation support for Network activities
Steering Committee members
Dr. Louis Girard
Adult nephrologist
Calgary, AB
Dr. Anne-Laure Lapeyraque
Pediatric nephrologist
Montreal, QC
Dr. Bryce Barr
Nephrologist
Winnipeg, MB
Dr. Marc Bienz
Hematologist
Montreal, QC
Dr. Susan Huang
Nephrologist
London, ON
Dr. Christoph Licht
Pediatric nephrologist
Toronto, ON
Dr. Monika Oliver
Hematologist
Edmonton, AB
Dr. Christopher Patriquin
Hematologist
Toronto, ON
Dr. Ratna Samanta
Nephrologist
Montreal, QC
Join the Steering Committee!
We welcome Canadian health care professionals with experience in the management of complement-mediated TMA. The committee aims to represent diverse regions, specialties, and perspectives.
To learn more about the roles and responsibilities of Steering Committee members and how you can get involved, please email us at info@ahusnetwork.ca with the subject line Steering Committee Interest.
Collaborate with us
We're always interested in building new relationships to advance aHUS care. If you or your organization would like to collaborate with the Canadian aHUS Network, please email us at info@ahusnetwork.ca to discuss potential partnership opportunities.
In your message, explain the nature of the collaboration you're proposing and how it might benefit the aHUS community.
Support the Network
The Canadian aHUS Network relies on financial support to continue its mission of improving care for individuals with aHUS across Canada.
Inaugural support: Alexion Canada
We gratefully acknowledge Alexion for providing the initial grant funding that helped establish the Canadian aHUS Network.
Seeking ongoing support
The Canadian aHUS Network is seeking ongoing funding to continue work in the following areas:
- Education: Developing and delivering professional education resources for healthcare providers
- Research: Supporting Canadian research initiatives focused on aHUS
If you are interested in discussing or providing funding support, please email us at info@ahusnetwork.ca with details of your interest.
Contact us
Have questions about the Canadian aHUS Network?
We're here to help.
info@ahusnetwork.ca